Foundation Fighting Blindness Chapter Meeting

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July 05, 2017
Frontier Fun

In late April, the Frontier Capital Foundation hosted the Foundation Fighting Blindness (FFB) Charlotte-chapter meeting at our office.  The mission of the FFB is to drive the research that will provide preventions, treatments and cures for people affected by retinitis pigmentosa, age-related macular degeneration, Usher syndrome and the entire spectrum of retinal degenerative diseases (more information on FFB here: http://www.blindness.org/). 

While the organization and the money raised are primarily dedicated to research, the chapter meetings are a great (and important) opportunity to build community among individuals, friends and families affected by these diseases.  This particular chapter meeting kicked off with a live performance and story by my brother, Tyler, who spoke about his decision to cultivate his love for the guitar and songwriting when his vision began to diminish.  Although I know his story well, I found his perspective to be very thought-provoking and inspirational.  I have a feeling that that sentiment was shared across the audience. 

From there, the meeting transitioned into an open discussion about the most helpful technology applications (particularly relevant to the Frontier attendees, although unplanned!) to utilize to more easily navigate a world that is not always designed with limited-sighted or blind individuals in mind.  The discussion was very interesting, and, more importantly, helpful.  One woman was recently diagnosed with retinitis pigmentosa, and she had no idea there were apps to contact sighted volunteers for help with live video chat.  There were numerous other examples with similar revelations that made for a great discussion and a fun day. 

We’re excited to continue our partnership with the FFB and will be hosting a team for their Vision Walk in October 2017.

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